So I've decided to gloss over Phx Children's a little bit. Here's the basics: we arrived at about 2am after the worst drive in history and they promptly gave me enough paperwork to keep me busy for 6 years...were they kidding???? We were led to the NICU where there were about 10 people crowding around him and they all started talking about who knows what with giant medical words. They put us in the new moms nursing room and we slept for 3 hours and then we went to war. The noises of the monitors was horrible and if anyone cares to remember I had held Alex for about 10 minutes after he was born...so I was a mess. Then they took him to the Cath lab where they jammed a balloon thru the center wall of his heart to help the blood move across his heart. Then 5 days later they operated....BT shunt...still on ventilator...then the vent came out! Woo Hoo!!! BUT THEN....the vent was back..he failed...he couldn't breathe on his own...why? They said he wasn't strong enough yet, give him some time, to rest...to heal. Then a week later the greatest day was when the pulled the ventilator...and it was out...he was breathing...day 1..day 2....day 5.....3:30 am he went into respiratory distress and the ventilator was back. They didn't have an answer, no real reasons...the solution....UCLA, transfer via the smallest plane in the universe for a transplant evaluation.....damn.
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