Tattle Tales Need Not Apply....

If you know me at all then you know I have verbal diahrea. Stuff falls out of my mouth when I do not have my foot in it. This Blog is to let my friends know what life is like with Alex. Sometimes, I will say not nice things. I will use bad words. I will type like I speak. If you are easily offended then this blog may not be the place for you. This is my place to shout, bitch and moan about all the wonderfulness that is Ebstein's Anolmaly and having a "baseball" husband.

Tuesday, May 26, 2009

PHX CHILDREN'S


So I've decided to gloss over Phx Children's a little bit.  Here's the basics:  we arrived at about 2am after the worst drive in history and they promptly gave me enough paperwork to keep me busy for 6 years...were they kidding????  We were led to the NICU where there were about 10 people crowding around him and they all started talking about who knows what with giant medical words.  They put us in the new moms nursing room and we slept for 3 hours and then we went to war.  The noises of the monitors was horrible and if anyone cares to remember I had held Alex for about 10 minutes after he was born...so I was a mess.  Then they took him to the Cath lab where they jammed a balloon thru the center wall of his heart to help the blood move across his heart.  Then 5 days later they operated....BT shunt...still on ventilator...then the vent came out!  Woo Hoo!!!  BUT THEN....the vent was back..he failed...he couldn't breathe on his own...why?  They said he wasn't strong enough yet, give him some time, to rest...to heal.  Then a week later the greatest day was when the pulled the ventilator...and it was out...he was breathing...day 1..day 2....day 5.....3:30 am he went into respiratory distress and the ventilator was back.  They didn't have an answer, no real reasons...the solution....UCLA, transfer via the smallest plane in the universe for a transplant evaluation.....damn.

Let's get everyone up to speed......

Alexander Montoyo (no middle name), October 17, 2007, 6 pounds  12 oz...18 1/2 inches long....he was born in about 7 minutes...really...I'm good like that.  He was totally normal, yelling his head off just like every other little one except for the fact that his hands and feet were bright purple.  Of course I had no idea....I was laughing over the fact that i had a baby in 7 minutes and Charlie was in the Wendy's drive thru with Tyson.  so they wrapped him up like a little football and gave him to me...he was cute, in that just born way...smooshed nose...cone head. They moved me to a triage room because it was a busy day for babies being born at TMC in Tucson.  Everyone came and hung out.....my mom, dad...Charlie and Tyson got back from lunch in time to meet the new baby...and Alex has a bottle of Enfamil which he wolfed down with astonishing speed.  We hung there for an hour...until my room was ready....and we went to the nursery...for a bath...and a hearing test........they never brought him back.

I did not have a private room which totally sucked but I had already had Alex so I figured that I'd only be there overnight so I was prepared to suck it up.  The lady behind the curtain had her baby with her and we could hear the little noises, but an hour later WE still had no baby.  Then there were people....random nurses, NICU nurses, my doctor...and a Cardiologist...Dr. Blair.  he came in and said that he thought Alex had Ebstein's Anomaly, he wasn't sure, it's not common, he was going to do more tests...not the worst he's seen....it'll all be ok....Alex will be fine.....Alex was in an oxygen tent....Alex stopped breathing....Alex was on a ventilator. Good job Doc...way to diagnose! There was other stuff...a vein that a baby has that closes in a few days...it lets them breath like fish when they're in the womb.....need it now....Nitric Oxcide....don't have it....UMC's nicu is closed.....oh shit, call the helicopter.....Alex is going to Phoenix.  Now it should be said that at some point we were in such shock and had no clue about what any of this was that I sent Charlie to Outback Steakhouse for carry out, somehow swung a private room....AND.....I had been escorted out of the NICU for calling the cardiologist a "damn liar".  Needless to say I discharged myself, Charlie got gas and a cup of coffee at Circle K and we drove the 2 hours up to PCH...Phoenix Children's Hospital.

There was random stuff...hearing the helicopter take off.....getting stuck in the bathroom at a 24 hours at McDonalds...I did have a baby...I had to pee...I got stuck on the toilet...not a pretty picture.  Charlie was drinking Red Bull or something with the coffee...not in the same cup...but I remember thinking that he was gonna puke.  I felt every bump on the highway, and  let me say that Arizona has some shit roads...so if anyone knows John McCain, tell him to stop bitching about Obama and fix the damn streets!