Tattle Tales Need Not Apply....

If you know me at all then you know I have verbal diahrea. Stuff falls out of my mouth when I do not have my foot in it. This Blog is to let my friends know what life is like with Alex. Sometimes, I will say not nice things. I will use bad words. I will type like I speak. If you are easily offended then this blog may not be the place for you. This is my place to shout, bitch and moan about all the wonderfulness that is Ebstein's Anolmaly and having a "baseball" husband.

Sunday, May 23, 2010

Top 10

Top 10 things to NEVER say to me……

1.     1.  You are so lucky your husband is home every day for 4 months (what about the 8 months he’s gone)
2.    2.  God gives special babies to special mommies (I don’t want to be special)
3.    3.  What doesn’t kill us makes us stronger (yup, made me strong enough to kill you)
4.    4.  We are doing everything we can….(really, then get someone else b/c you suck)
5.    5.  Oh, he’ll catch up (when…cuz I’m waiting)
6.    6.  My sister’s (brothers, neighbors…someone) baby had a hole in his heart when he was born, it was horrible.  (People, you haven’t seen horrible)
7.    7.  He doesn’t walk?  What wrong with him? (well, jackass, I was to lazy to teach him to walk and having him dust my floors with his butt seemed like a better idea)
8.    8.  I put him on “blah blah” prayer list.  ( I know you mean well but how is a list going to help)
9.   9.   It’s in Gods hands (really?  Cuz God dropped the ball on heart formation day)
10.  10.  What’s his life expectancy?  (longer than yours after I rip out your throat)


So now you’ve been warned!  J

Other peoples kids.....


I am waiting for the day that I am not irritated by other peoples children.  Not the loud ones….good God, they irritate everyone, but the good ones…the cute ones…the kids of my friends, neighbors, and other baseball wives.  But I am not getting there.  I try to chant in my head my own personal mantra…it’s not their fault…it’s not their fault…it’s not their fault….sooooo QUESTION OF THE DAY….whose fault is it?  Is it mine (probably yes, most things that are in this blog are 100 % my fault), is it theirs…no…not really but if they hadn’t been so damn normal I might feel  a little better.  Yes, I said it….I do not like the normal, age appropriate, milestone reaching children of this world.  I am happy for you that your child is the same age as Alex and can run, jump, eat, talk, loves Toy Story…hell, can even say cute pick up lines.  What I am not happy about is that in your desire to show me your kids new trick (which you have every right to be excited over…but hey, this is about me) you seem to forget that MINE doesn’t do any of that.  I KNOW that every child is different…..I KNOW that Alex had the pleasure of having a tube jammed down his throat for the 1st 6 months and the awesomeness of having his ribs cracked open not once, not twice but…wait for it THREE times….oh the JOY!!!!  I KNOW that every thing he does is a flippin miracle…but I don’t want a miracle…I want normal.  I sat in Durham at a wives lunch where we all just hung out and chatted and Alex ate pizza…it was awesome, amazing, super duper cool AND it was great that the wives that were there with me knew that this was a HUGE milestone for him, and they were excited for him….BUT why do I have to be?  He should have been smooshing carrotts and peas on his face at 6 months not only getting brave enough now.  Look, I know that my kid is messed up…he deserves to be.   You have all that crap taped to your face for all that time and tell me how comfy you are with a fork coming at your lips, but still.  There are kiddos who are starting to walk…Alex doesn’t.  Tyson wrote a damn story about it…..it was his 1st grade “feelings” report.  “My little brother, Alex is special.  He is 2 ½ years old.  He will be 3 in October.  He still can’t walk  or talk.  It makes me sad that he can’t play with me.  It makes me sad when people ask what’s wrong with him.  It makes me mad when they ask if he is dumb.”  REALLY???????  Is he dumb?  Nope.  Is he lazy?  I’m voting yes, but I’m lazy too and if someone would carry me around all day I’d totally let them.  We are making strides every day here in Casa Alex but don’t be mad if I don’t applaud when your kid starts to walk, or waves “bye bye” at me.  Don’t be mad if I don’t comment about it on FB…which I’m going to take a break from soon.  So to all you proud mommys and daddys out there…good for you…go talk about it to your other friends.  Do I care about you and your kid…yes.  BUT…..I am a big bitter mess who has to fight with the insurance co., the therapists (yup I got a few), the doctors, the health care supply people…crap, even the airlines cuz they don’t make it easy.  I have to feed my kid thru a tube in his tummy because 1.  He is scared to death of anything coming near his mouth (getting braver) and 2.  His vocal chord is paralyzed so it doesn’t close to protect his airway and sometimes (lots of the time) the stuff ends up in his lungs.  So when your kid starts chewing gum at the miraculous age of 10 months I don’t want to know about it. I’ll find out that he’ a gum chewer when he gets it in your hair.